One Year Ago…
- Jake was diagnosed with FPIES
- Jake could only eat sweet potatoes, pears and breastmilk
- Our pediatrician had never heard of FPIES
- I began a total elimination diet and figured I’d be sending bottled breastmilk to college with Jake
- My main resource was Babycenter Fpies group
- I stalked the Babycenter FPIES group hourly
- The FPIES United Family Fund was born
- I was a much better blogger
- I couldn’t remember what it felt like to sleep through the night
- I started reading labels on everything
- I was afraid to feed my baby Jake
Today…
- Jake still has FPIES, but it’s manageable
- Jake drinks cow’s milk instead of breast milk
- I still read labels on everything
- Jake eats everything but rice, oats, bananas, quinoa, beans
- Our pediatrician still doesn’t know anything about FPIES
- I stalk the BabyCenter FPIES group weekly-ish
- The FPIES United Family Fund has raised over $40,000 towards research
- Good Morning America did a segment on FPIES
- There are more resources than BabyCenter: Facebook here and here or the newly launched FPIESFoundation for example
- If I get woken up at night, it’s my 8 year old, 6 year old, or snoring husband. Jake sleeps great.
- I’m a bad blogger
- I am not afraid to feed Jake (well, maybe just a little)
