Jake's FPIES triggers from our experience (which trumps any patch test) are RICE, oats, bananas and corn (in the form ascorbic acid). Here are the results from his patch test:
Definite reaction - Oats, green beans and QUINOA (wth?)
Slight reaction - wheat, banana, green pea
No reaction - milk, soy, corn, chicken, turkey and RICE (wth?)
So what do I do with this information now? How did rice not have a reaction? Rice has been his worse FPIES reaction. This alone makes me not trust any negatives he had. And quinoa? I eat a lot of quinoa. Quinoa looked just as bad as oats on the patch test. Now that I think about it, I didn't have much last week. He slept better last week. Maybe it is all related? I feel like I need to process all of this. I feel lost now. I was hoping this test would reffirm things, but all it has done is left me confused.
We're supposed to watch the patch spots for the next 5 days, recording any changes. Call back to the office with our observations. Continue to feed him foods we know are safe. We may start trialing those foods that tested negative. I don't know. I didn't plan on trying any of those foods until he was a year old.
I guess this is where I use my Mommy instinct more than medical advice. I think we'll still continue some fruits and veggies before I do anything big. I just need to step away and process this new info. I need to do a little more research. Maybe millet? I wish we had a grain. But the slight reaction with the wheat has me worried. I'm definitely staying away from quinoa. I know he reacts to corn. I'm curious about edamame... it's soybean, but is it a legume? Is it related at all to a green bean?
All this testing did was provide me with more questions than answers. *sigh*
Our allergist doesn't do patch testing. Some days I think it would be really nice, othe days I think there are enough unsolved pieces to this puzzle, and I'm glad we never had it done. It just doesn't seem to be accurate and I'm afraid I'd be the same - left with more questions than answers in this already questionable diagnosis!
ReplyDeleteEllie obviously has severe reaction to soy and dairy, and did not react to those on her APT. Its so frustrating isnt it?
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