Monday, August 19, 2013

Bye Bye FPIES.

JAKE is officially done with FPIES.  Done.  He is 3 years, 6 months old.  I'm kind of beside myself. I don't have to check labels, ask servers for ingredients, call ahead to restaurants, deprive my poor kids of french fries (actually I won't miss that).  

Now we deal with the regular three year old struggles.

Separation anxiety (we started preschool last week), potty training, tantrums, and picking battles as they come.  

But we don't have to deal with food any more.  It may take me a while to stop checking labels.  

I'm glad I kept this journal.  Thinking back to his first birthday with only a few safe foods and still nursing like there was no tomorrow with a strict elimination diet, it seems like so long ago.  Jake's pediatrician still doesn't recognize FPIES.  It seems like it almost didn't happen.  Things are moving along here.  Kids are growing up.  Time doesn't stand still. We didn't make a big deal of it.  We never did.  We were always just.... careful.  We were lucky.  We only had three foods to worry about.

What have we done to celebrate?  Nothing.  We haven't made a trip to a forbidden fast food joint, which I figured would be the first thing we'd want to do.  Life just keeps going along as it did.  Jake's tried a few different items we love with rice.  Rice Crispy treats, sushi, etc.  He doesn't really like any of it.  

So that's it.  We're done.  Wow.  

I'm not sure it's really sunk in yet.   

32 comments:

  1. I just stumbled upon your blog. I am pretty sure my baby has FPIES. We are in the Phx area also and wondered what allergist you used. So far our pediatrician thinks we are crazy but is willing to get us a referral if we want it.

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  2. I'm sorry I just read your comment. We went to Dr. Shimamoto at San Tan Allergy in Gilbert. At the time he only had one other FPIES patient but was very knowledgable and helpful. I hope you find some answers for your little one.

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  3. Love this! I keep dreaming of the day we are done with FPIES and I can just send her to a birthday party and say HAVE FUN! haha. Exciting!

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